Ali McKean 5 Year Old Stone---A 5 year old girl, Ali McKean is
suffering from Fibrodysplasia ossificans progressiva (FOP), or Stone Man
Syndrome, a genetic disorder that’s only happens in one out two million
people. She is suffering from an extremely rare genetic disorder which
is slowly turning the muscles and ligaments of Ali McKean into solid
bone.
Ali was recently diagnosed with very rare genetic disorder called Fibrodysplasia Ossificans Progressiva, or FOP for short. Some have heard it referred to as stone mans disease, or real human mutants on the discovery health channel.
Ali (Alexandria) is a very vibrant 5 year old girl, who greets every day with a smile. She is very active and loves to play with her siblings (15, 14 and 7) and puppy! Ali has been through more than her fair share of medical tests and procedures in her 5 years with us. She has been poked and proded and even operated on, not knowing the drs were only progressing her disorder.
Ali’s mother Angela McKean said that if no cure or treatment is found, it will inhibit all of her mobility. Basically she’s freezing into a statue.
Unfortunately, it took five years to get her diagnosed because a lot of doctors don’t know about it, so all of the procedures that they did to try to diagnose her just made it worse.
Every bump and fall will add to more bone building in Ali’s body, and having surgery to remove the excess growth will only make the bone grow back, according to a report from The Daily Mail.
Out of an estimated 700 confirmed cases in the world, 2,500 have gone undiagnosed.
Most undiagnosed victims’ condition will speed up with the unknowing trigger of bumps and bruises even surgery that hastens its process.
Surgery to remove the excess bone has shown to cause stronger bone to grow back in the area, as a kind of malignant healing Ali’s parents are raising money for research and a cure.
Ali was recently diagnosed with very rare genetic disorder called Fibrodysplasia Ossificans Progressiva, or FOP for short. Some have heard it referred to as stone mans disease, or real human mutants on the discovery health channel.
Ali (Alexandria) is a very vibrant 5 year old girl, who greets every day with a smile. She is very active and loves to play with her siblings (15, 14 and 7) and puppy! Ali has been through more than her fair share of medical tests and procedures in her 5 years with us. She has been poked and proded and even operated on, not knowing the drs were only progressing her disorder.
Ali’s mother Angela McKean said that if no cure or treatment is found, it will inhibit all of her mobility. Basically she’s freezing into a statue.
Unfortunately, it took five years to get her diagnosed because a lot of doctors don’t know about it, so all of the procedures that they did to try to diagnose her just made it worse.
Every bump and fall will add to more bone building in Ali’s body, and having surgery to remove the excess growth will only make the bone grow back, according to a report from The Daily Mail.
Out of an estimated 700 confirmed cases in the world, 2,500 have gone undiagnosed.
Most undiagnosed victims’ condition will speed up with the unknowing trigger of bumps and bruises even surgery that hastens its process.
Surgery to remove the excess bone has shown to cause stronger bone to grow back in the area, as a kind of malignant healing Ali’s parents are raising money for research and a cure.
