Ben Roseth Power Boy, Ben Roseth, Minnesota Power Boy---Boy, 8, joins sibling 'superhero' group to battle rare disease: Ben Roseth, 8, suffers from a rare, fatal genetic disorder that robs him of his strength adrenoleukodystrophy.
So when he and his three siblings autism formed a "superhero group" they called the "Fearsome Four" to raise money to fight Roseth's disease, it seemed appropriate that the boy's alter ego be named "Power Boy" foundation that supports research into Roseth's condition Adrenoleukodystrophy foundation.
Most kids look up to superheroes, but one special boy has actually become a superhero in his battle with an incurable disease that may eventually spread to his brain and cause rapid deterioration.
Ben Roseth is known as “Power Boy” by his family and friends, a name given to him by his mother in order to help the 8-year-old cope with a debilitating disease known as Adrenoleukodystrophy (ALD). He and his three siblings, who all have autism, make up the group the “Fearsome Foursome” and together fight against the ALD.
Ben used to be fearful of the hospital and treatments that help him gain back some energy, according to his mother.
“Ben can get a fever and then all of a sudden his legs don’t work,” his mother Brandy told HLN. “He has trouble keeping weight on. The signal doesn’t go to his body that tells him he’s hungry.”
When Ben contracted the H1N1 virus last year, friends and family gathered around to encourage him … that’s when they came up with the idea of “Power Boy.” His siblings, wanting to help their brother and be a team, quickly joined in and all have their own superhero personalities.
So when he and his three siblings autism formed a "superhero group" they called the "Fearsome Four" to raise money to fight Roseth's disease, it seemed appropriate that the boy's alter ego be named "Power Boy" foundation that supports research into Roseth's condition Adrenoleukodystrophy foundation.
Most kids look up to superheroes, but one special boy has actually become a superhero in his battle with an incurable disease that may eventually spread to his brain and cause rapid deterioration.
Ben Roseth is known as “Power Boy” by his family and friends, a name given to him by his mother in order to help the 8-year-old cope with a debilitating disease known as Adrenoleukodystrophy (ALD). He and his three siblings, who all have autism, make up the group the “Fearsome Foursome” and together fight against the ALD.
Ben used to be fearful of the hospital and treatments that help him gain back some energy, according to his mother.
“Ben can get a fever and then all of a sudden his legs don’t work,” his mother Brandy told HLN. “He has trouble keeping weight on. The signal doesn’t go to his body that tells him he’s hungry.”
When Ben contracted the H1N1 virus last year, friends and family gathered around to encourage him … that’s when they came up with the idea of “Power Boy.” His siblings, wanting to help their brother and be a team, quickly joined in and all have their own superhero personalities.
